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The Denise D’Ascenzo Walk to Fight Rare Diseases

Sat April 25, 2026
Hamden, CT 06518 US
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Prader-Willi Syndrome, a rare genetic disorder, manifests in various physical, mental, and behavioral challenges. Despite the complexities of this diagnosis, PWS Families United has spearheaded transformative initiatives. These include providing valuable educational resources, facilitating research grants that instill hope for our children's future, and, most importantly, fostering enduring friendships.

Top Donors

$1,600 Raised By 8 Donors

$500 on behalf of Barbara Kenny
$250 on behalf of Aedan Tenbrunsel
$250 from Anonymous
$200 on behalf of Jen and Dan Griffin
$125 on behalf of Aedan
$125 on behalf of Aedan
$100 on behalf of Jo Robinson
$50 on behalf of Nicole Cavallaro

Fundraisers

Aedan Tenbrunsel
$250 Raised
Phyllis Bysiewicz
$125 Raised

Teams

Team Aedan
$1,600 Raised

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