Hello friends and family!
As most of you know, Crawford was diagnosed with FOXP1 syndrome in 2020. FOXP1 syndrome is considered a rare disease that is caused by a mutation or change to the FOXP1 gene. The gene is located on chromosome 3 and includes the instructions or “recipe” for making the FOXP1 protein. As a member of a family of transcription factors, it is vital in regulating the expression of other genes. FOXP1 controls when and how specific genes affect the development of the nervous system, along with many other systems. When a gene like FOXP1 does not function properly it can lead to a wide range of developmental delays and medical needs.
Since diagnosis, Adam and I have helped start and run the International FOXP1 Foundation to raise awareness and to support research of FOXP1.
Please join us in this virtual Race For Awareness over the weekend of August 9-11 to support the Foundation and Crawford!
How a virtual race works: you pick the location, you pick the start time, time your 5k, and use the BIB number assigned to you at registration to log your time on the website. When you register, please join Crawford's Fox Troop. It’s easy and fun!
Thanks for supporting our team!
With love,
Adam, Kate, Crawford, Sidney & Hayes
