Hi there! We are running Hustle for the Muscle 5K for Peter and Maggie and other children who are affected by rare neuromuscular diseases.
10 year old, Peter, and subsequently, his sister, 7 year old, Maggie, have Limb-Girdle Muscular Dystrophy Type 2C (LGMD) - an ultra-rare form of dystrophy that affects children, causing progressive muscle wasting leading to loss of ambulation by teenage years, lung and heart involvement and often, a shortened lifespan.
In early 2023, The Dion Foundation was born. The mission at the Dion Children Foundation for Rare Disease is to increase awareness of rare and ultra-rare genetic diseases such as Limb-Girdle Muscular Dystrophy, that affect children with the intention of allocating funds for research and development of potential treatments and cures of these devastating diseases. The belief at Dion Children Fund is that no child should be left behind.
Our Mission, your help.
