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Move to Cure STXBP1 Disorders

Sun September 1 - Tue December 3
STXBP1 Fundraising Team

Team Kaylee

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$13,549

Raised of $10,000

$0
$10,000

About Team Kaylee

Welcome to Team Kaylee’s Fundraising Page!

Kaylee’s smile is infectious. She lights up the room with her presence. Her love for music, snacks, corn on the cobb, and her family is endless. Kaylee faces many challenges everyday, and works harder than typical kids her age to reach her milestones. She is determined, and never gives up. 

Kaylee has been diagnosed with a rare genetic disorder called STXBP1. While we do not know what the future holds for Kaylee, we do know that we will fight for her every step of the way. Kaylee shows up every day to her therapy with a smile on her face. Sometimes spending 2-3 hours a day with her therapists, she has a desire to keep up with her older sister.

September is STXBP1 Awareness month. Let’s get moving to shine a light on STXBP1 disorders.

Please join us any way you can. Whether you want to join our in-person event (see below for details), donating to our fundraiser page, or buying Team Kaylee apparel (see link below). 

In-person event
Join us for a 1 mile walk on Sunday October 13th at Forge Pond Park in Hanover at 10am.

Thank you in advance for your generous donation to the STXBP1 Foundation, we are thrilled to have you join Team Kaylee. Your donation and participation means the world to us and the entire STXBP1 community! Donations directly fund critical research for treatments, therapies, and a cure for STXBP1 disorders. 

Buy custom team shirts here: https://www.bonfire.com/team-kaylee-1/

Top Donors

$13,549 Raised By 89 Donors

$750 in honor of Michael Rapa
$729 in honor of 53 Shirts Sold!
$500 in honor of Craig & Karen Morena
$500 in honor of Dolly Keegan
$500 from Anonymous
$500 in honor of K9 Kitt Foundation
$500 in honor of Kaylee’s Great Gram
$500 in honor of Lauren Carnes
$250 in honor of Daniel O’Brien
$250 in honor of Eric Chesna
$250 in honor of Jeff Johnson
$250 in honor of John & Kathy Scribi
$250 in honor of Kathleen Fanning
$250 in honor of Susan White
$200 in honor of Andrew Thomas with prayers Paul&Diane
$200 in honor of Alan Smith
$200 in honor of Debra s Glover
$200 in honor of Diane and David Pizzano
$200 in honor of Frino MacCormack Family
$200 in honor of Jane, Robert , and Dorothy chase
$200 in honor of Joe Montilio
$200 in honor of Pete and Jenn
$200 in honor of Steve Rose
$200 in honor of The Palimeri Family
$150 in honor of Al and Liz Liguori
$150 in honor of Shelley Baglino
$100 in honor of Andrew & Jaymi DeRusha
$100 in honor of Arianna Efstathiou
$100 in honor of Ben Montilio
$100 in honor of Brian Dewey
$100 in honor of Brian& deborah Smith
$100 in honor of Brianna Feman
$100 from Anonymous
$100 in honor of Christine Hoadley
$100 in honor of Dana and Christine Allen
$100 in honor of Diane and Tom good
$100 in honor of Geoff and Heidi Lucas & family ❤️
$100 in honor of Jacqueline Montilio
$100 in honor of Joan Maguire
$100 in honor of Joanne Jesse
$100 in honor of Joel and Darcy Levy
$100 in honor of Josh Sulger
$100 in honor of Katie Egan
$100 in honor of Lindsay Morena-Webster
$100 in honor of Marisa Baldassarre
$100 in honor of Mark and Diana Montilio
$100 in honor of Maryann Chesna
$100 in honor of McKenna & Clara
$100 in honor of Megan Jesse
$100 in honor of Michele Mcintyre
$100 in honor of Michelle Boyd DeJong
$100 in honor of Mike McEvoy
$100 in honor of Nathan Morena
$100 in honor of Owen, Oliver & Jerry Rapa
$150 in honor of Pete & Hilary Fanning
$100 from Anonymous
$100 in honor of Saheeda Mohammed-Kelly
$100 in honor of Shaena Alfonsi
$100 in honor of Speranzo Family
$100 in honor of Steph Glover
$100 in honor of Susan White
$100 in honor of Team Kaylee
$100 in honor of The Jesse Family
$100 in honor of The Memory Family
$100 in honor of Tracey Fitzgibbon
$50 in honor of Brian Mclaughlin
$50 in honor of Christine Guess
$50 in honor of Elizabeth Berardi
$50 in honor of Heather MacCormack
$50 from Anonymous
$50 in honor of Janice Mechan
$50 in honor of John Haskell
$50 in honor of Katelin Jenkins
$50 in honor of Leslie Mayer
$50 in honor of Linda Ryan
$50 in honor of Mary and Phil DeRusha
$50 in honor of Paul Zaniboni
$50 in honor of Stephen Maccini
$25 in honor of Courtney Griffin
$100 in honor of Desireerose Leduc
$25 in honor of Duong Nguyen
$25 in honor of Holly Feman
$25 in honor of Jenna curtis
$25 from Anonymous
$50 in honor of Mary Curran
$25 in honor of Mary DePaulo
$25 in honor of Mona and Todd Friedland
$25 in honor of Nancy Smolinsky
$20 in honor of Sarah Deroche

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