Ship Bottom Brewery's Running With the Sharks 5K

Sun June 11, 2023 Beach Haven, NJ 08008 US Directions

The Sturge-Weber Foundation (The SWF) global mission is to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port-Wine Birthmark conditions through tenacious collaboration with clinical partners and pioneers, education, advocacy, research and friendly support.

For the SWF 2020-2021 Fiscal Year, the Foundation is focusing on aspects of CARE | Connect. Accept. Respect. Engage. 

We intend to define better than ever how SWF will continue its 32 plus year legacy of impact in the lives of patients and family, and continue ground-breaking research that will lead to better treatments, quality of life and ultimately, a cure.

We CONNECT and provide support for patients and families living with SWS .

We ACCEPT the challenge to forge a better quality of life for those with SWS.

We RESPECT those who lead us forward through critical research of SWS.

We ENGAGE society through education to provide a better understanding of SWS.

Top Donors

$518 Raised By 23 Donors

$400 on behalf of Second Capital Running
$11 on behalf of Ben Sclarow
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$10 from Anonymous
$5 on behalf of Chris Siclare
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$5 On Behalf Of Damiano Del Pino
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$5 On Behalf Of Donna Cancel
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$5 from Anonymous
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$5 on behalf of Steven Onufrey
$1 on behalf of Anna Gillon
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