Skip to main content

Sioux Falls Half Marathon: Skedaddle & The Bryan Boys for Hope: Zippy Mile

Sat May 18 - Sun May 19, 2024 Sioux Falls, SD 57104 US Directions

Sioux Falls Half Marathon: Skedaddle & The Bryan Boys for Hope: Zippy Mile

Donation Goal: $5,000

Bryan Boys Story
Sawyer (10) & Wesley (7) Bryan, of Tea, were recently diagnosed with Duchenne Muscular Dystrophy (DMD), a rare progressive muscle loss disease.  “Bryan Boys for Hope” is the title created by the Bryan family to raise awareness, education and drive funding in support of a customized therapeutic for both boys.  The Bryan’s have aligned themselves with a Boston based non-profit called Cure Rare Disease (CRD).

DMD is the most common fatal genetic disorder diagnosed in childhood affecting 1 in every 3,500 male births.  There is currently no cure for Duchenne Muscular Dystrophy.  The dystrophin gene is the largest known human gene and it provides instructions for making the protein dystrophin, which holds muscles together and helps maintain function.  This gene fits together like a long string of 79 puzzle pieces.  Any one duplication, deletion or error in the sequence can stop the protein from being produced.  Boys with Duchenne lose muscle throughout their life and typically lose the ability to walk between ages 10-12 and normally do not survive their mid-twenties.  The diagnosis of DMD runs on a spectrum with some seeing symptoms and hardships very early on and others showing struggles later in time. 

The Bryan’s current routine involves daily steroids, supplements, muscles stretches, strict diets, leg splints, bi-weekly physical therapy and a whole lot of Love and Prayer.  A muscle biopsy was recently completed for Sawyer at the University of Massachusetts and a prototype capable or repairing the gene discrepancy is underway at SickKids Hospital in Toronto. 

You can follow the Bryan family by searching ”Bryan Boys for Hope” on Facebook and Instagram and more can be learned about CRD by visiting cureraredisease.org.    

$1,664

Raised of $5,000

$0
$5,000

Top Donors

$1,664 Raised By 64 Donors

$131 on behalf of Jamie Williams
$131 on behalf of Madison Barry
$100 on behalf of Adam LeFebvre
$100 from Anonymous
$61 on behalf of Sarah Meagher
$61 from Anonymous
$61 on behalf of Zachary Goettsche
$45 on behalf of Daniel Christensen
$25 from Anonymous
$25 from Anonymous
$25 from Anonymous
$25 on behalf of Curt Reemtsma
$25 on behalf of David Krause
$25 from Anonymous
$25 from Anonymous
$25 on behalf of Jessie George
$25 on behalf of Jodi Tjeerdsma
$25 from Anonymous
$25 on behalf of Justine Olawsky
$25 on behalf of Keesha Merrick
$25 on behalf of Mark T Lavin
$25 on behalf of Martin Anderson
$25 on behalf of Melanie Johnson
$25 on behalf of Sara Hilmoe
$25 on behalf of Tanner Hilbrands
$25 from Anonymous
$25 from Anonymous
$20 from Anonymous
$20 on behalf of Sara Hilmoe
$15 from Anonymous
$15 from Anonymous
$15 on behalf of Brittany Hilgemann
$15 from Anonymous
$15 on behalf of Dale Weiler
$15 on behalf of Elijah Niemeyer
$15 on behalf of Faith Larson
$15 on behalf of Garrison Mulder
$15 from Anonymous
$15 on behalf of Janet Josten
$15 from Anonymous
$15 from Anonymous
$15 on behalf of Kristie Hoyme
$15 on behalf of Lance Dorian
$15 on behalf of Lee Gertsen
$15 from Anonymous
$15 on behalf of Luke Meyers
$15 from Anonymous
$15 on behalf of Natalie Volkotrub
$15 on behalf of Nick deVries
$15 from Anonymous
$15 from Anonymous
$15 from Anonymous
$15 on behalf of Tara Nuss
$15 on behalf of Taylor Hausmann
$15 on behalf of Thomas King
$15 on behalf of Tony Lesnar
$10 on behalf of Chanelle Duffy
$10 on behalf of Rahn Siemonsma
$10 on behalf of Rahn Siemonsma
$5 from Anonymous
$5 from Anonymous
$5 on behalf of Emily Nienkerk
$5 on behalf of Greg Aske
$5 from Anonymous

Enter a custom donation amount or select a donation level above.

$
Donation Attribution

If you continue to use this site, you consent to use all cookies. We use cookies to offer you a better browsing experience. Read how we use cookies and how you can control them by visiting our Privacy Policy.

If you continue to use this site, you consent to use all cookies.