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Show your support for Childhood Rare Disease Awareness and cheer our special VIP children affected by rare diseases at our 4th Annual 5K and 1M run supporting The Little Miss Hannah Foundation (LMHF). The organization's mission is to help enhance the quality of life for young children diagnosed with rare, life-limiting, or undiagnosed complex medical needs, as well as children who have been placed in hospice or palliative care. The foundation also gives parents the necessary tools and financial assistance to empower them to meet their child’s unique medical and lifestyle needs, as well as provide support resources and special attention for their other children. We also work to provide support groups for all members of the family by providing fun, family-focused and sibling-focused events and activities.
The Vegas Cares About Rare event is scheduled on February 29, 2020, the "rarest" day of the year, to coincide with World Rare Disease Day, raising awareness to the millions of people affected by a rare disease.
Did you know:
Many times, families affected by rare disease struggle to obtain expensive medical and therapy equipment designed to provide safety to these children and to improve the quality of their lives. The Little Miss Hannah Foundation provides this equipment at no cost to the families to enhance the quality of life of their children. Meet some of our special kids at our event!
Additional run information can be found at http://www.VegasCaresAboutRare.org.
If you have any questions about this run, click the button below.Questions?
The Little Miss Hannah Foundation is a Las Vegas-based 501(c)(3) nonprofit organization that was started in memory of Hannah Ostrea, diagnosed with the ultra-rare genetic disorder Gaucher Disease type 2. During Hannah’s life, there were many things that the Ostrea family needed to help manage Hannah’s care and enhance her quality of life. Because her disease was so rare, there were very few services available to them in the Las Vegas area. After she passed away at the age of 3 years 4 months in December 2011, the Ostrea family decided that they would create an organization that would directly help other local rare and medically complex families by supplying the equipment and services we were so desperately in need of during Hannah’s life.
Our organization staff is completely volunteer-based and made up of some amazing family, friends, and community leaders who believe that children like Hannah deserve so much love and support. We encourage our Las Vegas community to join us in providing the best quality of life we can to children diagnosed with rare, life-limiting and medically complex conditions in our town.