Rock CF's Big Weekend

Thanks for taking the time to visit this page. I've put this page together for some family and friends to once again to raise money for CF. We have made so much progress over the past decade yet there is still work that needs to be done. The good news is that we are so very close. In the next 10-20 years this will be behind us. Pretty remarkable that many of you have been part of the journey of curing this disease. Simply amazing and humbling. In 2012, I was fortunate enough to have a CF mutation that benefitted from Kalydeco (a gene modulator). Then a year ago 90 percent of CF patients in the United States were able to benefit from another modulator called Trikafta. Truly a game changer for people with CF, myself and my family. Due to the pandemic, I still haven't been able to celebrate with some of you and hope to do that soon. Although Trikafta has been approved by the FDA, I'm still enrolled in an open ended study for the next 8-10 months to see the lasting effects on people with CF. Furthermore, a new medication is already on the horizon.

It's a great time to have CF. While that comment may seem odd, it truly is. The science and technological advancements have been remarkable. These are only possible because of YOU. I thought it would be a fun virtual way that we can get after it and stay active for a weekend in March. You can run, walk, row, bike, ski, etc towards the larger goal of 65,000 miles. One of the greatest part of this organization is that supplies people with CF anywhere in the world with a complimentary pair of sneakers to promote exercising. If you know me, you know that exercise/activity continues to play a major role in my health and always has. Thank goodness for golf, racquetball, pickleball, and platform tennis. These have enabled me to stay healthy for the past year.

I hope that you will join me on this weekend in March wherever you may be and walk, run, bike, row, and play in some form as we raise money for CF.