PHF NORTHEAST WALK for Hydrocephalus Research 2024

We found out my sweet girl had hydrocephalus when she was just 4 months old at her 4 month wellness appointment. My pediatrican was very concerned about the size of her head and ended up sending us the the ER straight from the appointment. Tests and ultrasounds later our girl was headed to CHOP where they confirmed Hydrocephalus due to Aqueductal Stenosis. She was scheduled to have an ETV the next day. 

It has been a traumatic and wild ride but our girl is growing and doing well. She will have no boundaries in life as we push her to do anything she wants to do. Please join us in helping to raise funding for more treatment for patients like Callie!