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Move to Cure STXBP1 Disorders

Sun September 1 - Tue December 3
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STXBP1 Fundraising Team

Reese's Roadies
Move to Cure 2024

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$13,075

Raised of $10,000

$0
$10,000

Reese's Roadies Move to Cure 2024

Reese is still the same, happy, smart, kind, stubborn, beautiful, strong little girl we've known, but wow has she come a long way since Reese's Roadies 2023!! Over the past year, through NYC's Early Intervention program, she has gotten a communication device that she accesses with her eyes, a couple adaptive toys that she loves, and a gait trainer. Reese is still learning to use all of these devices, every day. We also enrolled her this summer in a 2-week intensive physical therapy (PT) program plus a second PT program that is 1-2 times per week. These two PT programs have made a huge difference for Reese - her strength has increased as well as her body awareness! It has been awesome, this little girl is amazing! Reese also starts preschool this September which is pretty surreal...

That all being said, Reese still cannot sit independently, cannot feed herself, and is nonverbal at the age of 3 years old. However, after going on our first family trip to the STXBP1 Annual Summit Meeting this past July, we are very hopeful for a meaningful treatment and/or cure for STXBP1 Related Disorders. Fundraising for STXBP1 Move to Cure is now through Giving Tuesday, December 3rd. Your donation will go directly to funding research for treatments, therapies, and a cure. Anything you can donate, truly means the world to us! We cannot thank you enough!!!

Click here for Reese's Early Story.

****UPDATE****For Reese's Roadies Move to Cure 2024, we will gather with our family and friends, as well as other New York based STXBP1 families & friends, on Sunday, October 13th around 10:30am at Magnolia Playground in Long Beach, NY (crossroads: Magnolia Blvd and W Broadway). Magnolia Playground is right next to the boardwalk, along the beach. It is an inclusive playground with equipment that kids of all abilities can use! Come hang out with us & breathe in the ocean air - it will be a relaxing, laidback, happy Sunday! Long Beach is an awesome town accessible by the LIRR with great bars & restaurants too! 

If you are looking to donate, please click "donate" on the Reese's Roadies main web page. If you are looking to help Reese's Roadies fundraise for the STXBP1 Foundation, you can register and click "join" the team. 

Alternatively, if you would like to send in a check, please make the check payable to "STXBP1 Foundation" and in the memo field write "Reese's Roadies". You can send the check to: 

STXBP1 Foundation

PO Box 1148

Holly Springs, NC 27540

*If possible, please let me know if you decide to send a check versus donating online*

Buy Reese's Roadies shirts here: Youths & Adults

Buy Reese's Roadies toddler shirts here: Toddlers

Interested in more STXBP1 Foundation shirts & merchandise, click here.

Top Donors

$13,075 Raised By 83 Donors

$1,000 from Anonymous
$1,000 in honor of Reese (from Mary Grande)
$1,000 from Anonymous
$500 from Anonymous
$500 in honor of Kathleen Sullivan
$500 in honor of Nathan and Kara Andrews
$500 in honor of Troy & Diane Watkinson
$350 in honor of Marisa & Michael
$250 from Anonymous
$250 in honor of Steven Vlakic
$250 in honor of The Strickland Family
$200 from Anonymous
$200 in honor of Cara Scales
$200 in honor of Cindy McClorey
$225 in honor of Lori Kaul
$200 in honor of Lori Kaul
$200 in honor of Reese Kaul and her Grandpa
$200 in honor of Sarah R
$200 in honor of Sean and Pauline Quinn
$200 in honor of Simona Rodano
$200 in honor of Ted & Catherine Bibbo
$182 from Anonymous
$150 in honor of Gus Reyes
$150 in honor of In honor of Reese Kaul
$116 in honor of 16 Shirts Sold!
$100 from Anonymous
$100 from Anonymous
$100 from Anonymous
$100 from Anonymous
$100 in honor of Elliot Brouse
$100 in honor of Grandma Karen Kaul
$100 from Anonymous
$100 in honor of Jeannine Angiolillo
$100 in honor of Joan Ford
$100 in honor of Kenneth Reichel
$100 in honor of Kenny Beichert
$100 from Anonymous
$100 in honor of L&M Nicholson
$100 in honor of Luis L
$100 in honor of Matthew Merson
$100 in honor of Michael Holubis
$100 in honor of Michelle Delaney
$100 in honor of Michelle and Dave
$100 in honor of Our beautiful Great Niece Reese
$100 from Anonymous
$100 in honor of Pete & Sharon Monahan
$100 in honor of Reese
$100 in honor of Reese (and her Dad)
$100 in honor of Reese (with love from the Hartofilis family)
$100 in honor of Reese Kaul
$100 in honor of Reese Kaul
$100 in honor of Reese Kauul
$100 in honor of Reese's Roadies
$100 in honor of Rich Juliano
$100 in honor of Selma Salter
$100 in honor of Sly and Lucy
$97 in honor of Heidi Fiore
$50 in honor of Carmela Bacani
$50 in honor of Eileen Muller
$50 in honor of Elle Quinn
$50 in honor of Janet Murphy
$50 in honor of Jessica Domb
$50 in honor of Lisa Marsico
$50 in honor of Luz Rosario
$50 in honor of Marie Masseo
$50 in honor of Mercy Wong
$50 in honor of Patricia Scales
$50 in honor of Reese
$50 in honor of Reese
$50 in honor of Reese
$50 in honor of Reese Kaul
$50 in honor of Reese Kaul
$50 in honor of Reese’s Roadies
$50 in honor of Tara Frawley Weber
$50 in honor of Vivian Ng
$30 in honor of John R
$25 in honor of Claudia Della Cioppa
$25 in honor of Coby LaSpina-Kaul
$25 in honor of Diane Russo
$25 in honor of Ginger Kiernan
$25 in honor of Ken Kaul
$25 in honor of Marygrace Grisanti
$25 in honor of Renata Obal

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