Welcome to the Team Jamen Fundraising Page!
Jamen is our incredible 2yo who loves music and dancing. He loves his sister and would spend every minute in water if he could. He devours goldfish and fruit bars, and he is a feline advocate (I assume, based on the amount food he drops on the floor for the cats). His laughter and smile are infectious, and they are both instantly brought out when he is on the swings.
Jamen also lives with an STXBP1 related disorder that affects communication between nerve cells. This has led to a Global Developmental Delay and a plethora of questions and uncertainties. Every day, Jamen has to work so much harder to reach his milestones, but he never gives up. His determination and progress are nothing short of inspiring. To know him is to love him.
Thank you in advance for your generous donation to the STXBP1 Foundation, we are thrilled to have you join Team Jamen. Your donation and participation means the world to us and the entire STXBP1 community! Donations directly fund critical research for treatments, therapies, and a cure for STXBP1 disorders.
We are encouraging supporters to get out and MOVE. Dance in the kitchen, somersault on the floor, run a marathon, or simply walk around the block.
Buy custom team shirts here: https://www.bonfire.com/team-jamen/?utm_source=copy_link&utm_medium=campaign_page&utm_campaign=team-jamen&utm_content=default
