DYRK1A Syndrome... Despite their classification, rare diseases aren’t so rare. Individually, these diseases impact a small number of people compared to more common illnesses. Collectively though, there are approximately 7,000 rare diseases causing a tremendous amount of suffering for 350 million people globally.
The big hurdle for rare diseases exists in the individual numbers. Since each specific rare disease affects a smaller number of people, research and financial allocation are relatively low – making each fundraising dollar tremendously valuable. We have the opportunity to connect with family and individuals affected, we will make sure they are not alone.
