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Cure Clark

Sat August 23, 2025 Charlotte, MI 48813 US Directions

Cure Clark

Donation Goal: $5,000

What Is Sanfilippo Syndrome?  Imagine Alzheimer’s and dementia, but in children.


In a nutshell, that’s what every family of children with Sanfilippo Syndrome faces.
Sanfilippo Syndrome — also known as Mucopolysaccharidosis type III or MPS III — is a terminal, neurodegenerative rare disease. It causes children to lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die, often before the second decade of life.

 

Because of its neurodegenerative nature and multi-system impact, Sanfilippo Syndrome is often called “childhood Alzheimer’s” or “childhood dementia.”

 

Currently there is no FDA-approved treatment or cure. But there is research happening and there is hope.

 

 

$3,513

Raised of $5,000

$0
$5,000

Top Donors

$3,513 Raised By 52 Donors

$500 on behalf of Randy Hildebrand
$500 on behalf of Unilabel
$250 on behalf of Christopher Odor
$250 on behalf of Hannah Brunner
$200 on behalf of Marc Ganop
$150 on behalf of The Avery family
$100 on behalf of Cheryll Unsworth
$100 on behalf of Chuck and Carol Ruehs
$100 on behalf of Clark's Family
$100 on behalf of Henry and Connie Ruehs
$100 on behalf of Kristy McMillan
$100 from Anonymous
$75 on behalf of The Adams Family
$50 on behalf of Deborah Adams
$50 on behalf of Jackie Hildebrand
$50 on behalf of Laura DeChelbor
$50 on behalf of Melissa Vanderkooi
$50 on behalf of Mike Cousino
$50 on behalf of Nicki Stahl
$50 on behalf of Olivia Bierwirth
$50 on behalf of Sandy and Russ Dion
$50 on behalf of Stephen Sisler
$50 on behalf of Teresa Auten
$50 on behalf of The Hank Ruehs Family
$50 on behalf of Zachary Hoover
$40 on behalf of Edward Morris
$25 on behalf of Barb Cousino
$25 from Anonymous
$25 on behalf of Melanie McNamara
$25 from Anonymous
$20 on behalf of Clark
$20 on behalf of Gulam and Saif hussain
$20 from Anonymous
$20 from Anonymous
$20 on behalf of Trent & Hannah Jackson
$10 on behalf of Ali Pollock
$10 from Anonymous
$10 on behalf of Debbie Thompson
$10 from Anonymous
$10 on behalf of Dinah Davis
$10 on behalf of Eva Baldwin
$10 on behalf of Heather Shah
$10 on behalf of Jessica Jackson
$10 from Anonymous
$10 on behalf of Mary Beth Cada
$10 from Anonymous
$10 on behalf of Titus Larsen
$7 on behalf of Alyssa Folkes
$6 on behalf of Cloey Willmore
$5 on behalf of Jaceline Prego
$5 on behalf of Jamie Andrews
$5 on behalf of Matt Ayotte

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