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NeoEndurance is a family oriented business but the family doesn't just stop with us. It includes your neighbor, your sister, your brother. It includes YOU! Something very emotional happened in our family not too long ago. We shared heartbreak. We shared tears. We shared love. Through all of this, we realized that we were not alone in this journey. There are many families who are affected by TTTS (Twin to Twin Transfusion Syndrome). It's important to us as a family to share this story in hopes that anyone else going through the same or similar knows, they are not alone. Here is a snippet of how Cole's Run came to be..
Two weeks ago we were enjoying a perfect twin pregnancy. We were happy and loving everything about preparing our lives for two baby boys. We were ready for it all, or at least we thought we were.
Two weeks ago we started seeing some abnormalities in the boys' sonogram, and last week we had to rush out to Los Angeles for a consult on Wednesday. We were blindsided by finding out that our babies were hours away from both being lost if we didn't do immediate surgery. Our babies were very sick and the condition came on much faster than it commonly does. Baby A was in the 1% for his size and his heart was struggling to keep him alive. Baby B's heart was thickened from working too hard and he was starting to retain fluid in his abdomen. They were diagnosed with stage 4 Twin-to-Twin Transfusion Syndrome (TTTS), the last stage where there is any hope in saving them.
They cleared their schedule for surgery that afternoon and they were able to divide the shared blood vessels and gave our boys a chance to survive. They both made it through surgery, but unfortunately we lost Baby A the following day. It has been very sad to think about, but the boys shared two major blood vessels that would have undoubtedly affected Baby B had Baby A passed before the surgery. We could have lost them both.
This was a very sudden situation that we found ourselves in and we acted as fast as we could, we went to the best specialist in the country for this syndrome, and they acted immediately. As sad as it was, the quick response by Dr. Chmait and his team saved the life of our baby boy, Brooks.
We had a follow up appointment this Wednesday and we are very happy to say that Brooks is already recovering from surgery ahead of schedule.
It has been quite a rollercoaster over the past two weeks. It was the hardest thing we've had to go through, but we are unbelievably grateful to still have a healthy baby boy to welcome to this world this summer. And we are incredibly thankful to have such an amazing support system behind us. Our friends and family, coworkers and acquaintances, have been so wonderful and supportive through this tough time, and we appreciate and love you all.
<3 Cole Everett Alderman
This is a brand new event for NeoEndurance in an effort to bring awareness to TTTS (Twin to Twin Transfusion Syndrome). Register to run either a 5k (you can also walk this!), 10k, Challenge (5k+10k) or sign your kids up for a 100 meter dash at Al Lopez Park in Tampa, FL.
Information regarding the non-profit organization will be coming soon!
The kids run will be conducted on the grass near shelter 315. Ages 4-10 only, please!
The entire family can enjoy this event that includes family live music and a kids run.
What do I get?
Every finisher will earn a custom themed medal, bib, and a certified time. This event is chip-timed!
Virtual runners will have their bib and medal mailed to them directly after the race. Please allow 2-3 business days for your package to arrive!
***Every child registered to run in the kid's fun run will receive a custom medal***
Strollers and wheelchairs are allowed on this course, but participants MUST stay to the right of the path to allow for passers.
Headphones are authorized, but we ask that you keep to a volume that allows you to hear race and park officials.
Children older than 6, can run the 5k. Children under 10 cannot run the 10k or the Challenge.
Pets (except certified service animals).
Double-wide (or wider) strollers. At some points on the course, the path isn't wide enough for three adults.
Skateboards, bicycles, tricycles, skates, etc...
Bandits. If you're not wearing a bib at the finish line, you won't get a medal!
This event is timed. Every bib will have a chip fixed on back. DO NOT remove the chip! To avoid a mis-read, wear the bib front and center!
If you have any questions about this race, click the button below.Questions?
This special block is reserved for the fearless! Run BOTH the 5k and 10k block back-to-back and receive 3 MEDALS!! Challenge runners will start with the 10k runners and continue until they've completed 15 kilometers. The 10k runners will start first at their regular scheduled time of 0800. To qualify for the challenge medal, runners will need to complete 15 kilometers. Can you run 9.3 miles? Let's do it!
This is a rain or shine event. We don't anticipate a drastic temperature in weather. It is, afterall, the "Sunshine State". However, in the unusual circumstance that this event is cancelled due to extreme weather (hurricane or heavy unrelenting downpour), there will be NO REFUND! Instead, we will reschedule the event to the next available weekend.
If you are unable to make it to the event, there are several options which can all be done by the runner under "Race Management" in their RunSignUp profile:
This course will utilize the Al Lopez Park loops. Runners MUST run the large loop first, followed by the smaller loop. This completes the 5k run. 10k runners will run TWO big loops and TWO small loops (IN THAT ORDER!!!). Challenge runners will run THREE big loops and THREE small loops.
*** VERY IMPORTANT!! PLEASE READ!! ***
Our timing mats are programmed to record times only after the runner completes the course in a specific order. If the runner fails to complete the course in the following order, your time won't be recorded and there will be NOTHING we can do to help you.
5k Runners: (BIG LOOP, SMALL LOOP)
10K Runners: (BIG LOOP, BIG LOOP, SMALL LOOP, SMALL LOOP)
Challenge Runners: (BIG LOOP, BIG LOOP, BIG LOOP, SMALL LOOP, SMALL LOOP, SMALL LOOP)
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