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The Inspectagator is hosting a race to benefit the Hydrocehalus Association and his daughter's thru hike of the Appalachian Trail 2019 to raise funds and awareness for Hydrocephalus. For every 1000 babies born in the US, 1 or 2 will be born with hydrocephalus, "water on the brain." This condition creates tremendous pressure on the brain and if not treated the baby/person will die. Currently the treatment is brain surgery to insert a shunt that will drain the excess fluid to another part of the body where it can be eliminated. Side effects can range from learning disabilities, vision problems, epilepsy, and walking. Many use walkers and wheelchairs. Willow is blessed to be high functioning and therefore wants to Hike for those who can't. Treatment requires brain surgery which she has had 7 so far and we know that there will be others as the shunt that is placed in the brain is manmade and the body attacks it till the shunt eventually breaks down and a new one is required.
Date & Time
Saturday, February 16, 2019
7:30 AM Start Time
Packet Pick Up
All packets will be available at Black Hammock Trailhead, race morning. Registration will open at 7 am.
This is not a chip timed race, but we will award prizes for the Top 5 male and female runners for each distance. Strollers, walkers and pets allowed.
parking at the trailhead will fill quickly, parking is available at the UCF building just West of the trailhead
If you have any questions about this race, click the button below.
This video explains our life. Our induction into parenthood started with her arriving 2 months early and teaching us about hydrocephalus. Those early years were very difficult. Doctors couldn't tell us whether she would walk, talk, live independently or not experience any problems. It was a wait and learn. To look at our daughter and to know her you may not see the effects of her condition. But, there are many. She is a lucky one and has learned how to overcome many of the effects and became a very strong runner. She knows how blessed she is as many with this would not be as high functioning. This Hike of the Appalachian trail is for them. To be the feet, the voice, the face for those who can't do it. We thank you for your support.
Thank you to our Sponsors
Swim N Fun
Quest Property Management
Creating Wealth USA
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