Charlie
In September 2023, The Geiger family welcomed identical twin boys, Henry and Charlie, into their family. At the end of November 2023, Charlie faced a medical emergency and was admitted to their local pediatric intensive care unit (PICU). After a week, he was discharged with a diagnosis of a milk protein allergy. Unfortunately, his condition quickly deteriorated. Just four days after returning home, Charlie was readmitted for two months of tests, but doctors still couldn't pinpoint a clear diagnosis.
In late January 2024, Charlie was transferred to Johns Hopkins Children’s Center, where the medical team immediately began working to find an answer. They discovered lesions on his spine, pelvis, femur and humerus, prompting several biopsies. As they awaited the results, Charlie's condition worsened significantly. For several months, he required ICU-level care, experiencing respiratory distress and gut failure, which left him unable to breathe on his own or tolerate feedings. He was placed on a ventilator and given IV nutrition.
After three difficult months, the pediatric oncology team identified a definitive diagnosis: infantile myofibromatosis. Charlie had rare tumors causing severe damage to his digestive system and bones, which in turn affected his ability to breathe. The medical team immediately sprang into action, researching and developing an appropriate treatment plan.
Following a lengthy, seven-month hospital stay filled with many challenges, Charlie was discharged in July 2024 and joyfully reunited with his twin, Henry, at home. Today, Charlie is a thriving 19-month-old! He continues to receive care from a team of pediatric specialists, including oncology, GI, pulmonology, physical therapy, and speech therapy (among others).
The Geiger family is proud to join the second annual Miracles in Motion race to help raise awareness and funding for infantile myofibromatosis, a condition that lacks widespread recognition and resources. Research played a vital role in developing a treatment plan for Charlie. "We hope to raise more funds for pediatric cancer research to support Charlie’s ongoing care and to help other families navigating similar challenges," says Charlie’s mom.
