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Bryan Boys Igniting Hope

The CURE is within reach, we need your help!

Cure Rare Disease (CRD) is on track to develop a life-saving gene therapy for Sawyer and Wesley, and others like them. To make it possible, we need your help to raise...2.2 million.

$58,479

Raised of $800,000

$0
$800,000
Donate

Our Ask to You

There are several options for how you can get involved in passing the torch. Choose the one that works best for you!

1. Start a fundraising team: Start a team to raise $5,000 by September 27 to support the mission. This does not include particpation in the 5K, but please reach out if you decide after starting a fundraiser that you would like to particpate in the 5K.

2. Participate in the 5K in-person: Join us at Tea City Park for our 4th annual Bryan Boys 5K! When registering, you will also have the option to start a fundraising team.

3. Participate in the 5K virtually: Not able to make it to the 5K on 09/27? No problem! Register to complete the 5K virtually and have the option to start a fundraising team to raise $5,000.

a picture of the Bryan family with their race bibs and medals

Who Are We?

We are The Bryans- Beau, JeanAnn, Sawyer (13) & Wesley (10) and we have called Tea, SD our home for the last 17 years. In 2019 both of our boys were diagnosed with Duchenne muscular dystrophy (DMD), a fatal muscle-wasting disease.

What is Duchenne Muscular Dystrophy (DMD)?

DMD is the most common, fatal genetic disorder diagnosed in childhood affecting 1 in every 3,500 male births. Boys with DMD lose muscle throughout their life, typically lose the ability to walk around age 10, and do not survive their mid-twenties. Rate of progression varies for each individual.

Is There A Cure?

With over 3,000 possible separate mutations in the dystrophin gene there is no cure-all. Our boys have an ultra-rare duplication within their gene, interrupting their body’s ability to produce the protein needed to maintain and support healthy muscle. The best hope for our boys is to receive a treatment via a therapy developed with their mutation in mind.

Who Is Cure Rare Disease (CRD)?

CRD is a non-profit biotech company based out of Woodbridge, CT that is making history by accelerating the pathway to life-saving gene therapies for people with rare neuromuscular diseases, who need them now. CRD and its collaborators are harnessing CRISPR technology to edit and correct mutated DNA to restore proper function to the dystrophin gene.

CRD and the Byran Boys

We teamed up with CRD in 2020, and since then, significant progress has been made on the development of Sawyer and Wesley’s treatment. A team of scientists have created a therapeutic for their mutation that is proving to be successful, and manufacturing is just around the corner!

How You Can Help

Manufacturing and dosing of the treatment takes time and money. It’s estimated that the treatment will cost $2.2 million dollars from start to finish, so raising funds is essential to continue this life-saving work. Please consider giving to the Bryan Boys and together we can give them a chance at a long, happy, and healthy life.

Pass the Torch

From the Zippy Mile on May 17 to the Bryan Boys 5K on September 27, 2025 we're launching a nationwide challenge to raise $800,000 for a groundbreaking treatment to help children, like the Bryan Boys, battling Duchenne muscular dystrophy. 

We are looking for 150 team leaders to "Pass the Torch" from May 17 to September 27. By becoming a team leader, you commit to raising $5,000+ to help fund a treatment. 100% of funds raised will be used for drug manufacturing. 

Teams

Top Individuals

View All

B

Battle for the Bryans

$10,050.00 raised of $30,000.00

Zippy Mile

$6,000.00 raised of $5,000.00

Beau & JeanAnn

$5,300.00 raised of $12,500.00

Team Hope

$5,000.00 raised of $5,000.00

Team Strength

$5,000.00 raised of $5,000.00


Support this campaign!

Donate Now

2 Boys. 2 Races. 1 Goal.

Race Details

When: Saturday, September 27, 2025

Start time: 9am

Where: Tea City Park, Tea, SD

Pre-Registration: Open until August 31, Adult $35, Children (ages 5-18) $25

(Late) Registration: Sept 1-27 Adult $40, Children (ages 5-18) $30

** (Late) Registration does not guarantee a t-shirt and wristband

***All registered participants will receive a medal when they cross the finish line!

Packet Pick Up: September 26 @ Squealer's Smoke Shack in Tea from 5-7pm

Any questions? Contact us!

If you have any questions about this race, click the button below.

Contact us:

4 Research Drive

Woodbrige, CT 06525

brittany@curerd.org

 

Mail checks to: 

Cure Rare Disease

Attn: Bryan Boys

4 Research Drive

Woodbridge, CT 06525

 

Venmo: 

@JeanAnn-Bryan

Last four: 9193

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