Hey there! I am running for Peter and Maggie and other children with rare neuromuscular diseases, such as Limb-Girdle Muscular Dystrophy (LGMD).
10 year old, Peter, and subsequently his sister, 7 year old, Maggie, were diagnosed with Limb-Girdle Muscular Dystrophy Type 2C - an ultra-rare form of dystrophy that affects children, causing progressive muscle wasting leading to loss of ambulation by teenage years, lung and heart involvement and often, a shortened lifespan.
The mission at the Dion Children Foundation for Rare Disease is to increase awareness of rare and ultra-rare genetic diseases such as Limb-Girdle Muscular Dystrophy, that affect children with the intention of allocating funds for research and development of potential treatments and cures of these devastating diseases. The Dion Children Fund believes that no child should be left behind.
Our Mission, your help.
